- "how long has your leg been swollen?" since may.
- "are you diabetic?" cris: "not really. he has elevated fasting blood sugar levels though. or did, when he had his radical nephrectomy."
- "do you have a heart condition?" me: "no." i didn't feel like telling her about the leaky heart valves and blood clots. one, let her diagnose me herself. two, she'll never believe me when i tell her how dr jimmy diagnosed it.
- "do you smoke?" me: "no." cris: "he did, until the operation. before that, he didn't just smoke cigarettes. he smoked cigars and unfiltered cigarettes." me: rolling of my eyes. trust my wife to give more information than is necessary.
- "have you gone back to your (kidney doctor)?" me: "no."
- "no? why not?" me: (shrug of the shoulders.)
- "are you taking any medication?" me: "medication as in medicines? no." and i start thinking, "uh-oh. here we go". cris: "he is very committed to his alternative medicine treatment. he diets and takes food supplements. i had to really convince him to come and have tests done."
- "oh? what supplements do you take?" cris and i look at each other. we have this small joke about how very appropriate the names of my supplements are. 'heart valve" for my leaky valves; "clot" for my blood clots. "heart ease" to strengthen my heart. and so on and so forth. me: "just herbal supplements."
- "what herbal supplements? can you bring them next time? and any literature you have." me, thinking only. "literature? you think this stuff is made by astra or novartis or smith-kline? you want to see the supplements? would you understand the ingredients?" obviously, i'm starting to get irritated.
Wednesday, December 29, 2010
in and out of lions' dens
Tuesday, September 22, 2009
How I spend my day, Part 1
the fact that this post is being uploaded today and not at a later date when i am more comfortable with it, is because of loy a's email asking about my diet, his wife has breast cancer and is undergoing traditional chemotherapy treatments. as i have said, any treatment should be able to cure us, as long as we believe that God is our Healer, and everyone else are His instruments. still, for what it's worth, i continue to espouse my alt med protocol.
there have also been a number of you who have asked about the protocol i'm following. i've given you teasers here and there of how my treatment goes, but here i will reveal all the dirty details. (as they say in the tabloids.) i've heard people say, 'what??!! raw pancreas? how can you eat that stuff.' it's not that difficult because it's not a delicacy; it's medicine for me.
i've also been asked, 'is eating any raw meat safe? what about bacteria?' in this update, i will explain to you why it's safe to eat the stuff i eat.
before i proceed, i must pay homage to the 2 persons at home who provide indispensable help in my treatments. there's melds, our cook, and former yaya of our eldest son, alfonso. she's been with cris and me since a week after we got married. she left us 9 years ago to start a family, but she came back 3 years later, with her family. melds buys food for us from the wet market and prepares my meals.
the other of course, is cris. she does two important things for me. she purchases my medicines, and pays for them, then sorts them out in these little pill boxes for my breakfast, lunch, and supper. the other thing she does, you'll soon find out.
without melds and cris, i would really have a very difficult time in following my protocol. i'm alive today because of their help.
now, tighten your seat belts for the ride. some of you might have tender sensibilities, so you're allowed to get off anytime you want. away we go.
i wake up everyday at around 4 or 5am. the actual time depends on whether i have to do things later in the day such as work a bit, or take the children to school and fetch them, or attend to my service in the parish, or something other than curing myself.
every 3 or 4 days, i try to keep track of my fasting blood sugar (fbs), so the first thing i do upon waking is to prick one of my fingers, get a drop of blood, and test it. the other time, it was 87, which was good considering the cheating on my food diet i've been doing these past celebratory weeks. the tests takes about 5 mins.
then, i do a bit of stretching exercise to ease the chronic pain in my lower back. dr jimmy taught me to bend over with my knees straight, slowly circling my arms, until gravity pulls my fingers down to the floor. i stay that way for about 20 – 30 seconds, then sit on my haunches before straightening up. i mustn't stand straight up from the bent-over position for it puts a strain on my back muscles. i can now touch the floor with my 2nd knuckles, and stay that way for up to 30 secs. not bad, huh?
after that, i take my first raw pork pancreas (rpp) serving for the day. i eat it with a clove of raw, crushed garlic, seasoning the rpp with natural rock salt, a bit of soy sauce, and chili flakes. eating this takes about 10 – 15 mins. if you ever need a quick 'waker-upper', try chewing on raw garlic and eating chili flakes upon getting up.
food preparation 101. first the rock salt. the salt i take cannot be the iodized table salt. according to dr jimmy, natural iodized salt is a redundancy. natural salt has all the necessary minerals for human consumption, including iodine. it's processed salt that needs iodine. and i can't take any processed food because of the chemicals added to them. they usually have carcinogenic food preservatives.
how do you know it's processed salt? take a small amount, drop it into water, hot or cold, it doesn't matter, and stir it. you will see the undissolved crystals.
but a word of warning. table salt isn't the only thing that's processed these days. they now produce processed rock salt. so always test the salt you're using. i just learned this morning that natural salt is no longer available in the wet market close to our house. the makati health services under the guidance of the the dept of health, has banned them. now, i'll have to look farther away to source my natural salt. i can always buy sea salt from the health food stores, but they cost a bundle. besides, why should i when the phils is a country of 7,000 islands, all surrounded by sea water? oh, for those who can afford expensive stuff, the other name for rock salt is sea salt. changing the name ups the price many times over.
the water i drink. we used to buy processed water. you know the kind that is filtered, reverse-osmosisfied (a new word i coined), and processed? they're supposed to be free of dirt and contaminants. well, they're also free of the minerals the body needs.
the rationale again of natural healing is that water naturally attracts minerals to itself. when the water is processed and stripped of its minerals, once it enters our bodies, it gathers the minerals in us and passes them out in our urine. we are left with too little of the minerals we need.
we now drink nawasa water. eeuukk! you say? well, first we filter it with a very good filter that takes away the dirt and contaminants, but not the natural minerals. i can't tell you the brand since i'm not getting anything to advertise them anyway. but it's german (or one of the nordic countries) and not too expensive. to take away the chlorine, we just leave the water standing in an open container for at least 30 minutes for the chlorine to evaporate. so then, we're drinking mineral water.
if i buy bottled water outside, i choose the mineral water. there are only 2 or 3 brands around. one of them is evian, which must be the most expensive water in the world, aside from perrier. (is perrier mineral or distilled?) i've only taken evian once, when ate nonette gave me a bottle, courtesy of the airlines she flies in. sosy, my aunt, no?
melds buys the raw pork pancreas (lapay) and raw beef liver(atay) from the wet market early in the morning to make sure it's from freshly slaughtered animals. she washes them well to remove grime and dirt. then soaks them for 10 – 15 mins in a small basin of mineral water with a cup of rock salt. she then wipes them off with a paper towel, wraps them individually in aluminum foil and places them in the freezer.
when it's time to eat them, we take a piece out of the freezer and chop off the portion i'm to take. it's 2 tablespoons of raw pork pancreas for every serving; and 3 tablespoons of raw beef liver. the crushed raw garlic i eat with the raw pancreas contains allicin which kills bacteria. with the proper preparation and cleaning, and the raw garlic, i'm safe from germs and bacteria. the only thing i have to watch out for are the bits of aluminum foil that cling to the frozen pancreas. they can stick to the space between my teeth, or worse get swallowed. i don't think my gastric juices are able to dissolve aluminum foil. i'd hate to have glitter in my stool.
here's the alt med rationale for the raw pork pancreas and the raw beef liver. according to dr william kelley, whose metabolic medicine protocol dr jimmy follows, we all produce cancer cells. they are a natural part of our body’s cell repair and regeneration, though they mutate to become killer cells. normally, our digestive enzymes and immune system are strong enough to kill these mutated cells so they don't do our bodies any harm. it's when our organs lose their effectiveness that we get into trouble. our pancreas may no longer produce enough enzymes, or the enzymes produced aren't potent enough to digest the mutated cells, and/or our natural killer cells are too few or too ineffective and thus unable to kill the cancer cells; either because the pathways are clogged or we're not getting enough nutrients from the food we eat.
cancer cells are born from germ cells or stem cells which are spread throughout our body to aid in cell repair and regeneration. germ cells are activated when a part of the body has had tissue damaged and needs to be repaired. cancer cells are activated germ cells gone awry – their cells are like placenta that grew outside the womb. similar to the placenta (i.e. the baby’s source of nutrition inside the mother’s womb), the cells multiply and grow very fast, and are self-sustaining, getting their food directly from the blood stream. cancer cells are wrapped in a protein-based cover which has negative ions, similar to the natural killer cells, thus, they are not detected by the body and identified as “enemy cells”, and continue to grow unhampered and largely undetected. the protein cover is very difficult to strip off unless you have sufficient potent enzymes.
a healthy pancreas produces enough enzymes to digest the food in the stomach, as well as travel through the blood stream to reach other parts of our body where they search for and digest excess/abnormal proteins. when they strip the protein cover off the cancer cells, the immune system within us targets them for elimination by the natural killer cells.
my pancreas doesn't produce enough potent enzymes so i need the pork pancreas which is loaded with live enzymes. how did my pancreas become so inefficient? too much rich fatty foods, and not enough vitamins from green leafy vegetables. and sometimes, even if we eat the right foods, we tend to overcook them such that their natural enzymes are killed off.
a healthy immune system produces natural killer cells which are potent (as opposed to lazy and ineffective). mine no longer is. that's where the raw beef liver comes in. raw beef liver is a rich source of nutrients, chock-full of vitamins, minerals, and other goodies our immune system needs. i'm sure you've all heard of athletes throwing together milk, yoghurt, celery sticks, tomato juice, and raw liver in a blender and drinking the concoction to give them strength and stamina. well, that's why i take the raw beef liver – it is a superfood for my immune system.
could i also take it blended? yeah, i suppose, but i'm used to eating and chewing it. you see, God did a wonderful job of preparing me for so many things in my protocol. He taught me to love strange, exotic foods early on. here's a favorite story, but if you're a rabid animal lover or possess a queasy stomach, maybe you better skip it and just go to the last paragraph.
when i was 7 years old, my uncle totoy or toots, as i called him, took me to his farm in the province. (i already lived in the province, but in the capital town. he took me to the boondocks, about 3 hrs drive away in those days.) it was a fiesta and since he was the rich landowner in the place, he had people all over the farm slaughtering pigs and chickens and goats and cooking them. one item that was never absent in his preparations was dog meat, THE local delicacy.
they butchered the dog by (close your ears if you can't stand 'cruelty' to animals.) tying it securely to a bamboo pole. with a sharp knife, they made a deep gash in it's throat, and caught the warm blood in a bowl. they transferred some of the blood in a glass and mixed in some gin so it wouldn't coagulate very quickly. as is the custom, they offer it to the big man around, my uncle totoy.
he looks at me, smiles, and says, 'give it to my nephew. let him drink it.' so all the guys around looked at me and smiled at the thought of a 7-year old child drinking the concoction, the man who had the glass of blood offered it to me. i looked at my uncle, and he told me to drink it so i'd grow up to be a brave man. i realized then that it was a rite of manhood. everyone expected me to turn it down, but half-hoped, for the sake of my uncle, that i wouldn't. when i hesitated, they said i had better drink it quickly before the blood turned cold and hardened.
i wanted to be brave, and i desperately wanted their approval. most of all, i wanted my uncle's approval. i took the glass of blood and drained it down in one go. the gin improved the taste of warm blood. that whole day, i strutted around like the cock on the walk, pleased with myself for what i had done. i ate anything they placed in front of me – pig's intestines & entrails cooked in blood (dinuguan), raw goat's and dog's meat (kilawin), animal brain made into an omelet, anything.
in my later years, i would eat balut, raw fish (kinilaw or sashimi, sushi), frog's legs, grasshoppers, beetles, freshly-caught eels, raw eggs chickens and birds, and fried ants and ant eggs. my mother herself, bless her soul, introduced me to two filipino delicacies; pampanga's camarro, which is fried larvae dug up from the ground, then deep fried, and the ilocos region's jumping salad. that's raw shrimp soaked in vinegar with salt, chopped garlic, and red and green chillies. why 'jumping'? because they're alive and they hop around in the deep dish they are served in. you put them in your mouth and feel them squirming inside before you chomp down on them with your molars and taste their sweet juicy flesh. hmm, delicious!
raw pork pancreas and raw beef liver? bring them on!
that's part 1 of this post, and we've only reached my first serving of raw pork pancreas. we still haven't even gotten to breakfast yet. as larry henares says, 'more tomorrow.'
Thursday, September 3, 2009
A day I'm glad to have
3 weeks ago, i went to see my alt med doctor, dr jimmy, concerned about the cancer in my left lung and the osseous metastasis in my right bone structure. he asked me sit down, then suddenly stopped, looked at me and asked, 'but how do you feel?' i couldn't suppress a wide smile because the previous day i had done 16 laps and felt pretty good. so i told him. he proceeded to do his muscle testing on me (one day, i'll explain what muscle testing is, but not now.)
when he'd finished, he looked down at me (he's not a tall guy, but he was on his feet and i was seated), and said, 'no, i don't detect any cancer anymore. you're fine.' i was floored. i didn't know if i would jump up and give him a great big hug (nope. i didn't. i'm a bit homophobic.); or break down in tears (neither. i was brought up learning big boys don't cry.); or just dance around the room (not that either. michael had just died so everyone was reprising their moonwalking skills, but i never had any to start with). so, i just sat there and tried to take in the various levels of meanings of his pronouncement.
no more fear? no more worrying? no more raw pancreas and raw liver? well, not that. he quickly disabused me of any notion of giving up those delicacies. he said i have to continue with the protocol for the entire 6 months (3 more months to go) and for the rest of my life, still take them on a reduced frequency so that the cancer doesn't come back.
as i walked out the gate, i remembered to say a quiet prayer of thanks to my Healer. in the excitement, i had temporarily forgotten about Him. but i'm getting better, in the BC days (before cancer), i would have probably reached home in makati from la vista before i would remember.
by the time i got home, the doubts had creeped in. what if dr jimmy was mistaken? what if he's just a quack? what if i'm not healed? so i started to agonize until i remembered who the real Healer is. God said he'd take care of me and i have to keep my faith in His word.
anyway, cris and i decided it's time to use my oncologist's request for another ct scan. i'm still holding off on the request for the mri. the contrast dye they use for ct scans and mri's scares me. i've read that it has bad affects on the kidneys. until i find a compatible kidney donor, who will cheerfully donate his/her kidney to me without cost, i'm taking very good care of my one remaining kidney.
but i recall how inconclusive either of those tests can be. the findings in my left lung were basically disregarded bec they were too faint to definitely indicate cancer cells. the osseous metastasis (i've learned to like the sound of that phrase. it's sooo alliterative. is that the word i want? it glides off the tongue so smoothly, masking its lethal connotation,) was not conclusively cancer either. it could be 1) very bad arthritis, 2) severe trauma, 3) severerer osteoporosis, or 3) severest osseous metastasis. take your pick. you'd have a 25% chance of being right.
so why the hell go through the exercise at all? well, bec it would be so pleasant to hear that the results don't indicate any cancer at all. and it would be sooo ssweeeett to see the face of my oncologist when he reads that report. i wouldn't feel i would have to comfort him anymore. or maybe on second thought, i'd have to comfort him even more when he realizes all their high-tech machinery and expensive education didn't help me at all. (snicker. snicker. snicker.)
and then, another problem reared its head. so, i'm well? what if i was never really sick? what if i didn't have cancer at all? i just said those tests were all inconclusive, didn't i? then all these prayers from friends were a waste of effort? all my blog posts had no meaning? in the words of the bard, were they 'all full of sound and fury, signifying nothing?' will people say i just wasted their sympathy? will my friends now abandon me and label me a fraidy cat, a boy who cried wolf?
oh! the shame! the humiliation! it's almost too much for someone with my inflated ego to bear. good thing my ego is inflated enough to handle it.
the other indicators my oncologist warned me to look out for, are not evident either. he said to watch out for cysts in the lymph nodes around the neck and in the crotch; negative. pain in the affected bones, specifically my right arm; negative. pain in the lower back; positive, but then i've felt pain there for some time, besides, they're more like muscle pains. they go away when i do stretching exercises.
this morning i took my fbs, and it registered at 74. first time i ever went below 84. the only irritating indicator is my weight. i looked at the scales earlier and i'm down to 156 lbs. i had been holding on to 160 for around 3 weeks. but i kind of expected the weight loss bec i've been missing the brown rice part of my meals these past 2 weeks. not everyday, but often enough to make me suspect i'd lose weight.
so for those of you who want to slim down, i highly recommend a vegan diet, guaranteed to help you lose those pounds or kilos or tons. of course the crucial thing is motivation; you just want to lose weight, i don't want to lose my life. it's like someone stuck a loaded gun to your face and said, 'your meat dishes or your life?' no contest, really.
so anyway, a day after seeing dr jimmy, i hied off to the Blessed Sacrament again, sat down, and asked God a direct question, 'am i healed? am i well? am i cancer free?' actually, those were 3 questions.
His response was a simple, 'how do you feel? d'you feel sick? are you weak, tired, debilitated? do you suffer from nausea? vomiting? how do you FEEL?'
sheepishly, i answered, 'to tell You the truth, i feel fine. i feel pretty good, in fact.'
and He said, 'well, what more do you want? church bells ringing? fireworks going off? singing and dancing in the streets?' not in exactly those words, but that was the feeling i got.
and no, those were not what i expected. i wanted reassurance that i was ok. but the sense i also got from Him was, 'that's all the reassurance you'll get, or need. you feel fine, and you are fine. so don't fret over it. say 'thank you' and enjoy your blessings.'
so, thank you, Lord. thank you, cris. thank you, kids, thank you to my family, and thank you to all of you, my friends. you are all blessings to me. oh, and don't go away. it's nice having you around.
and that's life with benjie, on another day i'm glad i have.
Sunday, August 30, 2009
Fellow travelers on different pathways
actually, i didn't read randy's lecture until just a few weeks ago. one of the reasons it didn't appeal to me before i got sick, was that i knew it was grounded on his dying of an incurable disease. although i loved to boast that i wasn't afraid of dying because of 'encounters with a yaqui indian' or more popularly known as 'don juan', carlos castaneda's experiences with a peyote-imbibing mexican sorcerer, and because of my Catholic faith. (how can you fear dying when it only means being reunited with the God you swear you love with all your heart, with all your soul, with all your mind, and with all your strength. those two factors taught me to accept death as a constant companion. yet truth to tell, i never wanted to turn to him and face him squarely in the face. i kept him at bay, beside me, but only in the periphery of my vision. so randy's lecture was not as inviting to me as it was to others.
when i finally gave in to ate aiding's urging and downloaded a copy of randy's 'the last lecture', i felt a distant closeness to him. 'distant' because i never knew him, yet close because of connections i saw between us.
obviously, we shared the same illness, tho he had pancreatic cancer, the most lethal of cancers, while i had renal cancer.
i didn't major in computer science because the course didn't exist in the phils when i was in college, but i did go into computer programming.
he was a professor, and i did some sort of teaching. he loved stuffed animals, and so did i: stuffed squid, lechon with paella stuffing, rellenong bangus, chicken galantina.
and we both were able to make some childhood dreams come true. mine didn't result in anything as world-changing or consciousness-expanding like his did – floating in zero-gravity, making virtual reality a reality (or is it, realizing virtual reality? or making real virtual reality?), creating new courses that challenged students to learn simultaneously in diverse disciplines - but i got some of my own humble, selfish dreams done just the same.
my list of dreams included: 1) living in europe. done, 9 months in bonn, 4 years in madrid. 2) hitchhiking in europe. oh, very well done! 3) living out michener's 'the drifters' in spain, and to a degree, in morocco. de puta madre, tio! 4) coming home to do my little bit to end the marcos dictatorship. rallies in ayala, including one where i faced down a gun-toting marcos supporter, and the big one on edsa.
randy doled out some valuable pieces of advice: 'brick walls' (problems) allow us banner our dedication. 'don't bail', 'show gratitude', 'don't complain. just work harder.', 'be good at something', 'work hard.' and one i never really bothered with in my life, until lately, 'find the best in everybody.' amen. amen. and amen.
because i started feeling this affinity with him, i wanted to follow him on his journey from the first phases of his illness to the end. i looked for his story and found 'randy pausch's update page'.
http://download.srv.cs.cmu.edu/~pausch/news/index.html
his journey started in early sept 2006, when he was diagnosed with pancreatic cancer. he had a successful operation that removed all the tumor. he found a chemotherapy treatment that gave him a 45% chance of living up to 5 years. previously, his doctors had given him a 10%-20% chance of lasting that same length of time.
he went to houston from philadelphia for his chemotherapy that took 2 months, from nov to end dec 2006 . then another 5-month session back in philadelphia from late jan 2007 to end april 2007. after that, all indications were great for randy. he survived the chemo sessions with minimal discomfort, although he was fatigued for periods at a time.
may 2007 was a great time for randy. he had finished his chemotherapy treatment; his ct scan was clear and his ca19-9 tumor marker level was 9, which in his words, was 'well within the normal range'. he was well enough to resume his biking. he was able to play flag football with friends after a long absence, and that was only 6 days after finishing his chemo! he and jai even celebrated their 7th wedding anniversary with their children at a resort where he rode a zip line.
then at the end of may, he has an mri exam at john hopkins hospital and discovers a cyst and other lesions. his cancer is back. he has vaccine shots to arrest the growth of the tumors. his treatments take him till the end of july. he gets his last vaccine shot on 23 jul and expects to be back every 6 months for booster shots. he writes, 'Interestingly, this marks the last thing I can do to help myself, which is a little unnerving. I'm channeling that anxiety into starting to hit the gym with real vigor - building my body up in case there are more surgeries or chemo down the road....'
on 26 aug, he gets devastating news. a ct scan reveals he has 10 tumors in his liver and smaller ones in his spleen. the doctors estimate about 3 – 5 months of relatively good health left. after that, they have no way of telling how fast the cancer will progress, but they say it will not be a good way to go. he settles on pallative chemotherapy which will buy him a few more months, but the chances even of that are only 15% – 20%. There is no doubt about the diagnosis. in about a month's time, he will give his 'last lecture' in carnegie-mellon.
in the next months, he goes out of his way to enjoy his remaining days. he and his eldest son, dylan, take a 4-day father and son trip to orlando, florida. the entire pausch family celebrates halloween dressed as 'the incredibles'. in early november, randy and jai take a vacation on their own in virginia, and get to meet sting and the police at a concert. jai is a big police fan.
in the following months, the pallative chemotherapy works and keeps randy strong enough to receive the numerous awards he is granted. he is also commissioned by hyperion, the publishing arm of disney, to turn his 'last lecture' into a book. he works with the pancreatic cancer action network (PanCAN) to drum up funds from private donors and congress for research. he goes scuba diving in the cayman islands.
and most thrilling of all for randy, he is cast in the movie 'star trek: the future begins'. he has a very brief speaking part, but got to keep his own star trek uniform. how's that for making dreams come true?
in early march, randy receives a bit of good news and some bad news. the growth of his tumors seem to have been held in check. however, he has started to suffer from the side effects of his treatments. his chemo drugs have become too toxic for him. his kidneys are functioning at 50%; his blood pressure is up to 200/100. in addition, fluid is suspected in his abdomen which pushes against his lungs and heart, making it difficult for him to sleep on his back.
he is hospitalized and a needle tap is done to draw fluid from around his right lung. the fluid in his left lung is left to be treated with diuretics. he is very weak the whole month of march, but bounces back slightly in april, ready to do battle again.
then, good news! 'the last lecture' is launched and is an instant success. diane sawyer does a talk show on it. great stuff.
on 18 may, he and jai attend the carnegie mellon graduation. a couple of days later, he starts a new chemo treatment. a week later, he starts vomiting and has high fever. the chemo doesn't work. new drug combinations have to be tried.
on 26 jun, randy writes that he continues to recover, albeit very slowly. his ca19-9 level which started at 9 in jun 2007, then went to 94 in feb a year later, to 216 by the end of mar 2008, and then at 634 by mid-may, is now at 1400.
randy dies on 25 jul 2008. given 3 – 5 months to live 12 months earlier, he beats the odds. sadly though, he never reached his goal of 5 years.
my own journey started on 16 april, when i was hospitalized. on 23 apr, i had my radical nephrectomy. in simple terms, i had my right kidney removed because a mass had imploded causing me to piss blood. biopsy on the mass confirmed that it was a carcinoma.
a bone scan conducted previous to the operation, while i was waiting in the hospital for the urologists to arrive from a conference abroad and had really nothing to do, showed that the cancer had probably spread to my left lung and my right clavicle, down to my right arm. a subsequent ct scan showed the same thing. an mri done about 1-½ months later confirmed the bone scan and ct scan findings. the diagnosis was that my right bone structure had “osseous metastasis”. that's what traditional western medicine equipment said. traditional western medicine statistics said i had barely 6 months to live, maybe 2 years if i took the 'right' medicines.
when i consulted my alt med guide, he told me i did have slight traces of cancer cells in my left lung, but that the findings in my right upper bone structure was caused by osteoporosis, not by cancer, tho it had almost the same effect. my bone density was compromised and my bones were brittle; subject to fracture if i wasn't careful.
he said i could cure the cancer with his guidance. i could be free of cancer in 6 months my chances of success? 100% if i followed the protocol religiously. i couldn't help but like those odds. i liked it even more that he was giving me control of my treatment, my health, and my life. he spoke frankly saying that he woudn't be able to cure me. only i would be able to.
and you know about my conversations with God. He gave me the faith and the courage to make my choice of going with alternative medicine. 4 months on, i'm swimming 18 laps, i still drive myself around. (i'm not bed-ridden, nelia.) i function well. and hey! i look great at 160 lbs. my thick, wiry hair has even turned fine and soft. cris and nanay say it's because of my raw vegan diet.
if i had taken the 'gold standard path, i'd be down, net, about p500,000, be nauseous, feel weak, and really scared shitless, all thanks to the 'gold standard' drugs.
i don't mean to say that taking the western medicine path randy took is wrong for everyone, it's just not for me. but i do want to stress that my gratitude belongs more to God than to alternative medicine. He is the Healer.
i loved randy's 'last lecture'. he was intelligent, witty, informative, and above all, brave. yet it bothered me that in his whole lecture, not once did he mention God. his only reference to the spiritual was when he said at the start that he wouldn't talk about spirituality or religion, then joked about having a deathbed conversion and buying a mac.
even in his update page, the only mention of anything relating to God was after more tumors were found in his liver and was given only 5 more months of good health, he thanked carnegie-mellon, his church, his friends, and his family, in that order. even then, no mention of God.
i believe randy believed in God, but like most men of science, he seems to have believed in science more. he believed he had the best doctors in the world, and if you believe that you have 'the best doctors', then how can you look for other alternatives? science gave him 3 – 5 months of good health, and he believed. science told him chemotherapy is the best treatment available, and he believed. science said he had a 15% – 20% chance of lasting 5 years, and he believed. and you know what? what he believed came to pass.
i had a conversation recently with a friend of mine along the same line. the conversation went, 'we have very good doctors who have been taking care of us very well. but when the day comes that they tell us there is nothing more to be done, then we'll just have to give up.' it saddened me because when people say there is no longer any hope, that's when you should start to hope, simply because there is nothing left but giving up.

so, do i have any lessons learned? nothing nearly as profound as randy's. only this one – never give up!
whatever you encounter in your journeys, whatever obstacles, whatever hardships, whatever life throws at you. duck! then, move on. don't bail. don't stop. don't give up.
and that's life with benjie these days, enjoying your company on this journey of life, tho on different pathways.
Sunday, June 7, 2009
My selected treatment
the treatment method i have selected to rid myself of my cancer is based on dr william d kelley's metabolic cure for cancer. dr kelley wrote two books about his cancer cure, “one answer to cancer” and “cancer: curing the incurable without surgery, chemotherapy, or radiation”.
dr kelley was a cancer survivor for 43 years, after treating himself for pancreatic cancer. he died in 2005, of a heart attack. he, and his metabolic cure, were never accepted in the medical profession, probably because he never toed the official medical line for cancer, and also because he wasn't a medical doctor. he was a dentist. but during his career as an alternative medicine practitioner treating cancer patients, he had 33,000 well-documented cases, with a 97% cure rate, 93% after a patient had been treated through surgery, radiology, or chemotherapy.
the sloan-kettering center in new york spent 5 years reviewing his cases, though the report of their conclusions was never published. one doctor involved in the investigations, dr nicholas gonzalez, resigned from sloan-kettering after the report was suppressed, and opened up his own alternative med clinic in new york, basing his treatments on the metabolic cure of dr kelley.
if you're interested in obtaining more information about dr kelley and his metabolic cure (which incidentally, he applied to both cancer and diabetes patients), you can visit the following sites.
http://educate-yourself.org/cancer/kellymetabolicdiet13dec02.shtml
http://www.drkelley.com/what_is_cancer.htm
http://cancertutor.com/Cancer/Metabolic.html
my guide in following the metabolic protocol is jaime dy-liacco. jimmy, a vigorous man in his 80's, is also a cancer survivor of 15 years. he cured himself of pancreatic cancer using dr kelley's metabolic cure. you can read about his 'adam and eve' diet in the site below.
http://www.myhomespa.ph/articles/jdyliacco_adam&evediet.html
for the sake of balanced reporting, i have to add the following link about quacks in the medical profession. drs kelley and gonzalez are mentioned.
http://www.quackwatch.com/01QuackeryRelatedTopics/cancer.html
the most informative site i have found about dr kelley's metabolic cure, is at the url included below. it is written by a traditional western doctor in a critique for doctors, using medical terms and medical data. if there is one site i recommend to understand dr kelley's metabolic protocol, it is this site.
http://www.townsendletter.com/June2003/kelleycritique0603.htm
i've researched my condition in orthodox medicine sites on the web and came up with this site, among many others.
http://cancer.about.com/od/kidneycancerrenalcell/a/rcc.htm
ernie e, my former high-school classmate and now a doctor in texas, sent me a few items too, one of which was very informative.
http://www.cochrane.org/reviews/en/ab006017.html
i have learned that renal cancer does not respond well to radiation or chemotherapy. the first line of treatment is medication, more specifically immunotherapy (i think it's called). it is supposed to strengthen the patient's immune system and to arrest the growth of cancer cells, thus the medicines are also known as 'inhibitors'. i read that the medications, on the average, statistically speaking, prolong a patient's life from 7.3 months to 10.9 months.
the reactions of family and friends to my decision to go with alt med have been varied.
a few have expressed their disagreement and even disappointment, with my choice of alt med. they find it difficult to believe that a seemingly intelligent person (that's me) could cast aside science and strictly-controlled clinical studies in the field of medicine.
and in exchange, i place my health and my very life in the hands of untrained laymen, using untested procedures, with uneven results.
many people with cancer have been cured with orthodox medicine. but it has also failed to help others. similarly, alternative medicine works with some people; but others do not respond to it.
in the majority of reactions i have received, i sense incredulity, but the people are too nice to say so. generally, they take into account my faith in my Maker. they hardly know what to say, but instead offer me their prayers. for which i am thankful beyond words. i suspect that a lot of them secretly pray that my eyes be opened, my mind be enlightened, and my decision be reversed. their prayers are still welcome.
however, there are an adventurous few, who some may call foolish, who openly express their support for my decision. some of them really believe in alt med and its effectiveness; some have no thoughts about it one way or another, but defer to my right to make my own decisions; some truly believe that God is at work in and with me.
of all of these reactions, the one i value most is the last, that of those who believe in God's love, wisdom, and benevolence. for though i call it 'my' decision, it wouldn't be the decision i make if i did not believe that God supports that decision. in my acceptance blog post (may 8), i said that God is the Healer, alternative medicine or orthodox medicine are simply His instruments. i have to say that my faith in the instruments, is less than in Him who wields the instruments.
i am deeply grateful to all who have shared their thoughts, experiences, and knowledge with me, and continue to do so. for my part, i will continue to listen and weigh all that you say, for you too may be instruments of the Lord. i could have misunderstood the message God spoke to me. if so, i believe that my God, who is loving and wise and just, would correct me. i must remain open to His messages which may come from anyone.
i thank you for your prayers. to those rare few who claim not to know how to pray or who do not believe in my God, send me your good vibrations instead. that will suffice. my God is wise and loving. He will know what you mean and accept your prayers which you make in your own manner.
last thursday, we paid our second visit to the oncologist. after looking at my bone scan pictures, which i've posted in my picasa web album (for those who have been invited to it, the very long, but extremely thin thingee in the region of my pelvis ISN'T my penis. it's the catheter!), the doctor said that he's now more concerned with the dark traces showing in my right upper arm and elbow joint, rather than the traces in my left lung. apparently, the traces in the lung are too faint to base any firm decisions on, but those in my bones are so prominent as to merit further investigation,
i explained that i used to play a lot of tennis. in fact, there was a time i wanted to be a tennis bum. not in the sense of playing in the professional tennis circuit, but at least in local open tournaments. this was in the early 80's, after i returned from my 5-year bumming sabbatical in europe. i was living with my mom in vigan, and didn't want to do anything but play tennis and lie in the beach.
the only reason i went back to work as a contractual programmer was because i needed to buy tennis rackets, tennis balls, tennis shoes, and pay for tennis bets. unfortunately, once i started working, i had to give up tennis. isn't that grandly LOGICAL!?
back to my illness. that was a long time ago, but the past year or so, i've been complaining about pain in my shoulder joints and my right elbow when i drive, esp our manual transmission vehicle. so, now apparently, cancer may have been the cause of the pain? maybe not.
the onco has scheduled me for another ct scan, this time concentrating on my bone structure. but first, i have to have my creatinine level tested.
cris' new boss, who has been very supportive throughout my latest health trials, has arranged for us to have a 2nd-opinion consultation with dr ang peng tiam, medical director and senior consultant of the parkway cancer centre of singapore. cris sent him my medical test results, which he has perused. i now have the chance to consult with a world-class oncologist. i hope that will assuage the apprehension of those who worry about my choice of alt med. (gawrsh! i'm on a roll here. first, 'peruse'; now 'assuage'.)
another hs friend, dr liz, tells me that ct scans are not good indicators of cancer. she strongly recommends a pet scan. my cousin, laida, suggested the same thing because the pet scan will sniff out and pinpoint the cancer cells in my body, wherever they hide themselves. but my pockets aren't deep enough, so i'll still keep it under serious advicement for now. meanwhile, i'll just have to stick to my pet koi fish, the cheap kind.
on the other hand, my alternative medicine physician told me my cancer was in my left lung, and no traces of it in my bones. so there.
for those who ask cris, or themselves, (but seldom ask me directly) how i am? the answer, my good friend bitan, is 'i'm fine.' that means i'm alive; i am enjoying my life, my family, and my friends; and i am serving God. how can i be any 'finer'?
my wife recently told me i'm a good patient, very conscientious with my diet and my medications. she also considers me a true believer and follower of the Lord. she said that she expects me to be there at our 6-year old daughter's debut. if there's one thing i've learned in this life, it's that it's very dangerous to disappoint one's wife. and so i will do everything to dance the first waltz with my daughter at her debut.
and that's life as benjie, in this year of living dangerously.
Saturday, May 23, 2009
Selecting a cure
once people learned i had cancer, family and friends came forward to offer assistance by pointing cris and i to several doctors, oncologists, and alternative medicine practitioners. i realized i had to think of how i would like to be treated.
although the natural choice would normally be western medicine with its scientific and technological developments over the years, i have been a follower and believer of alternative medicine for a long time. the idea of natural remedies has always appealed to me. maybe it's because of my being a filipino, with all our herbolarios, hilots and faith-healers. i grew up in the province where these were the healers of first choice, because doctors educated in western medicine were not always available or were beyond the financial capability of barrio people.
besides, western medicine despite all its well-funded research and scientific clinical tests, has a 'hit or miss' element in its treatments. it is not uncommon for doctors to prescribe a drug for a malady, and when it doesn't work on a patient, to move on to the next drug, and then, move on again, until the right one is found.
even the more expensive, modern machines are not 100% accurate or effective. doctors admit that radiology and chemotherapy affects not only cancer cells, but good cells as well. they have side effects which are managed with more drugs, which in turn also have other side effects.
the western medications and treatments work for some people, but not for others. on the patients that respond well to the therapy, the healing is sometimes partial or temporary. i believe this is because different people will react to these medications and treatments in different ways. after all, each of us is unique in our physiology and chemical compositions.
defenders of western medicine will say that these “gold standard” therapies are backed with years of extensive research and development, and have undergone strictly controlled tests in order to ensure their safety and effectiveness. they can quote medical statistics to prove each treatment’s effectiveness. yet, there are adverse effects. yet, healing is not assured.
at this point in my journey, i have chosen the alternative medicine route. i can imagine my traditional (read, western medine) doctor-friends moaning and groaning, and saying what a great mistake i am making. i am playing with my health and my life. i am delaying the application of medications and treatments that could save my life.
bear with me while i explain my decision.
why choose alternative medicine, which is fraught with hocus-pocus, quacks, and frauds? because sometimes real healers can be found among them.
but they have no scientific data to back them up; no strict clinical tests done on their treatments. of what use are scientific data or clinical test results to me, if i have no assurance of being cured? uncertainty exists in both western and alternative medicine.
while it is true that alternative medicine have no empirical data to back it up, there are living, breathing people who have been cured with it. like a doctor of mine said, 'how can you argue with success?' well, some successes exist anyway.
but why alternative? because, as i've said, i'm partial to 'natural', as opposed to synthetically produced drugs that are based on natural elements.
i have heard several alternative medicine explanations of cancer. different treatments based on natural healing abound. how do i separate the grain from the chaff? i listen and try to go with what sounds the most logical to me.
how can i trust my own uneducated, unscientific assessment of a similarly wide variety of alternative medicine therapies? because in the end, i am responsible for myself. it is my life (and to be macabre about it, my death) and no one else’s. am i forgetting cris and my children? no, i am not, but i have to live my life, as they do theirs, and i also believe i am making the best choice that will allow me to share a fuller longer life with them. we all make our choices. some will be good, most will not be so good. i have made some unbelievably bad choices in my life! but i have always been prepared to pay the price for them, as i am doing now.
but the thing that leads me most to alternative medicine is my desire to be an active participant in my healing process, rather than a passive patient. with western medicine, i am given medications and treated by a physician, who is expected to heal me. in the alternative medicine approach i choose, i am my own healer, and my physician is my guide.
this may seem like a good cut-out mechanism for my alternative medicine coach. if i am not cured, it's my fault, not his, for not following instructions, for not sticking to my prescribed diet, for not religiously taking my food supplements, for not exercising properly. if the western-trained doctor does not heal me, hey! it's not my fault. he failed in his job.
but i prefer taking the responsibility for my well-being and cure on my shoulders, rather than on letting someone else bear the weight of all that responsibility.
cris is concerned about the tone of finality in my decision. would i change my mind if alternative medicine doesn't work? would i be willing to go the other route? like they said, 'it ain't over til the fat lady sings', and right now, there ain't any fat lady around to sing.
sure, i'm willing to explore, to listen, to weigh and to judge. but i have put down the guidelines i would like to base my decisions on. these are things i believe define the values i live by. and if we don't live by the values we choose in life, what are we but slaves to circumstances?
would i trade my good looks, ie hair, strong-looking physique, for a few more months of life under chemotherapy? would i prefer to be alive but weak and helpless in my bed? would i be able to stand the looks of fear and pity in the eyes of cris, my children and my friends when i am wasted and unable to function properly?
difficult questions to answer unless you're face to face with death. yesterday, i met an old classmate from la salle, chito jaraiz. he has cancer too. and he told me, 'we are the fortunate ones, benj. we know that we will soon be gone and can prepare for it. the others have no prior warning, and that could be more dangerous.' indeed, bro.
i have one last, over-riding reason for staying on my chosen path. on the day after i consulted with the alternative medicine practitioner whom i had already selected to be my guide, i decided to lift up my decision to God. i went to mass and stayed with the Blessed Sacrament for some time. i had made several decisions in the past without consulting the Lord. some of them turned out to be good decisions, some, bad. but even with the good decisions, without the Lord's blessing, the uncertainty would weigh heavily on me. this time, i needed His guidance. i could do without so much uncertainty.
i asked Him my questions; i prayed; and then, as i usually do in front of the Blessed Sacrament, i kept quiet, and listened, and prepared myself to wait. His answer came immediately and with such force, that i could not question His response . His words to me were, “Western or alternative medicine, makes no difference. Either one can make you well. What is important is My presence. I am the Healer.”
and that's life as benjie, with God.